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Tough Stuff
Living with cystic fibrosis
I have a disease called cystic fibrosis and it’s terminal. Most nights I cry myself to sleep and sometimes I just wanna scream. Most of my friends don't see that side of me cause I don't like to show it. I don’t know what to do or how to deal. Please help?
First of all, I just want to let you know I admire your bravery. Asking for help is a very hard thing to do, but it is definitely a step in the right direction. Dealing with a chronic disease, such as cystic fibrosis, is terrifying, but you don’t have to deal with it alone.
It’s perfectly normal for you to feel scared and alone, but the truth is, there are people out there just like you. Talking to other people who are feeling the same emotions is good for your body and good for your soul. By discussing your feelings, you’re lowering your stress level, which is definitely a health benefit.
Most importantly, you don’t have to explain yourself. They already get it. Ask your school counselor or doctor for help in contacting a local support group for young adults with cystic fibrosis. You’ll be glad you did.
It’s okay to cry. It’s okay to scream. But you can’t let it control your life. Finding a positive outlet to express your frustration, such as painting, writing poetry or dancing, will make you feel better both inside and out. Having a hobby will keep your mind focused on something good instead of dwelling on the negative.
If you’re the religious type, it may not hurt to reach out to a spiritual leader for guidance, such as a pastor, priest or rabbi. If that’s not your thing, try yoga or Pilates to help clear your mind.
Opening up to your friends—in a letter or in person—will also help. Real friends will understand and help you through those difficult days. They’ll also be there to cheer you up when you need it, because that’s what friends do.
You only get one life, one chance to make a difference, so you might as well do it big. Visit the official Cystic Fibrosis Foundation website to learn more about your illness and get involved in the fight against cystic fibrosis. Knowledge is power and it can help you understand your situation better. There are inspiring stories about people living amazing lives with your condition. You can be one of them, too.
First of all, I just want to let you know I admire your bravery. Asking for help is a very hard thing to do, but it is definitely a step in the right direction. Dealing with a chronic disease, such as cystic fibrosis, is terrifying, but you don’t have to deal with it alone.
Find a support group
It’s perfectly normal for you to feel scared and alone, but the truth is, there are people out there just like you. Talking to other people who are feeling the same emotions is good for your body and good for your soul. By discussing your feelings, you’re lowering your stress level, which is definitely a health benefit.
Most importantly, you don’t have to explain yourself. They already get it. Ask your school counselor or doctor for help in contacting a local support group for young adults with cystic fibrosis. You’ll be glad you did.
Keep the faith
It’s okay to cry. It’s okay to scream. But you can’t let it control your life. Finding a positive outlet to express your frustration, such as painting, writing poetry or dancing, will make you feel better both inside and out. Having a hobby will keep your mind focused on something good instead of dwelling on the negative.
If you’re the religious type, it may not hurt to reach out to a spiritual leader for guidance, such as a pastor, priest or rabbi. If that’s not your thing, try yoga or Pilates to help clear your mind.
Opening up to your friends—in a letter or in person—will also help. Real friends will understand and help you through those difficult days. They’ll also be there to cheer you up when you need it, because that’s what friends do.
Live. Laugh. Love.
You only get one life, one chance to make a difference, so you might as well do it big. Visit the official Cystic Fibrosis Foundation website to learn more about your illness and get involved in the fight against cystic fibrosis. Knowledge is power and it can help you understand your situation better. There are inspiring stories about people living amazing lives with your condition. You can be one of them, too.
Most importantly, remember there is hope. There are people who love you know matter what. Don’t give up. Keep on fighting, girl, and don’t let your illness fight you. You go, girl!
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